不同家庭照护模式对慢性病患儿生活质量的影响

盛楠; 马佳莉; 丁文雯; 张莹

doi:10.16016/j.1000-5404.201803037

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不同家庭照护模式对慢性病患儿生活质量的影响

临床医学 | 更新时间：2026-01-09

- 不同家庭照护模式对慢性病患儿生活质量的影响
- Effect of family management patterns on quality of life of children with chronic diseases
- 第三军医大学学报 2018年40卷第17期页码：1605-1612
- 作者机构：
- 作者简介：
- 基金信息：
  
  上海市卫生和计划生育委员会科研基金(201540212);上海市教委护理高原学科项目(Hlgy1602gj);上海市教委护理高原学科项目(Hlgy17003yjs)
- DOI：10.16016/j.1000-5404.201803037
  中图分类号：
- 收稿：2018-03-05，
  
  纸质出版：2018-09-15
- 稿件说明：
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盛楠, 马佳莉, 丁文雯, 等. 不同家庭照护模式对慢性病患儿生活质量的影响[J]. 第三军医大学学报, 2018,40(17):1605-1612.

Nan SHENG, Jiali MA, Wenwen DING, et al. Effect of family management patterns on quality of life of children with chronic diseases[J]. Journal of Third Military Medical University, 2018, 40(17): 1605-1612.
盛楠, 马佳莉, 丁文雯, 等. 不同家庭照护模式对慢性病患儿生活质量的影响[J]. 第三军医大学学报, 2018,40(17):1605-1612. DOI： 10.16016/j.1000-5404.201803037.

Nan SHENG, Jiali MA, Wenwen DING, et al. Effect of family management patterns on quality of life of children with chronic diseases[J]. Journal of Third Military Medical University, 2018, 40(17): 1605-1612. DOI： 10.16016/j.1000-5404.201803037.

摘要

Abstract

Objective

To identify the effect of different family management patterns for children with chronic diseases on their quality of life.

Methods

A total of 394 chronically ill children aged 8 to 18 years and their caregivers were recruited from 2 Grade-3 Class-A children hospitals in Shanghai from June 2016 to July 2017 through convenience sampling. A demographic questionnaire

Family Management Measure (FaMM) and Pediatric Quality of Life Inventory 4.0 Generic Core Scale (PedsQLTM4.0) were employed to survey the participants. Cluster analysis was performed using SPSS 20.0 based on the scores of 6 FaMM subscales to categorize different patterns of family management. General characteristics and quality of life of the children were compared in different types of families.

Results

There were 4 identified clusters in family management patterns

that is

effective managing

adaptive managing

incompetent managing

and difficult managing. Significant differences existed in the disease duration

times of hospitalizations within half a year

length of hospital stay

days absent from school

one-child family

family monthly income

parental educational level

parental occupation

and total scores and score of every dimension of quality of life among the children from the 4 clusters (

0.05). Multiple regression analysis showed that disease duration

days absent from school within half a year

and incompetent and difficult family management patterns were associated with children's overall quality of life (β=-0.119

-0.147

-0.248

-0.294;

0.05)

and they accounted for 23.1% of the variance of children's quality of life.

Conclusion

There are 4 different family management patterns for children with chronic diseases

and they are closely associated with their quality of life. Doctors and nurses can make more accurate disease management plans for the families of children with chronic diseases according to the characteristics and differences of different family management patterns

which can effectively improve the quality of life.

关键词

Keywords

references

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