Effect of family management patterns on quality of life of children with chronic diseases

Nan SHENG; Jiali MA; Wenwen DING; Ying ZHANG

doi:10.16016/j.1000-5404.201803037

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Effect of family management patterns on quality of life of children with chronic diseases

更新时间：2026-01-09

- Effect of family management patterns on quality of life of children with chronic diseases
- Journal of Third Military Medical University Vol. 40, Issue 17, Pages: 1605-1612(2018)
- 作者机构：
- 作者简介：
- 基金信息：
  
  the Scientific Research Foundation of Shanghai Municipal Health and Family Planning Commission(201540212);the Project for High Altitute Subjects of Shanghai Municipal Education Commission(Hlgy1602gj);the Project for High Altitute Subjects of Shanghai Municipal Education Commission(Hlgy17003yjs)
- DOI：10.16016/j.1000-5404.201803037
  CLC：
- Received：05 March 2018，
  
  Published：15 September 2018
- 稿件说明：
移动端阅览
Nan SHENG, Jiali MA, Wenwen DING, et al. Effect of family management patterns on quality of life of children with chronic diseases[J]. Journal of Third Military Medical University, 2018, 40(17): 1605-1612.
DOI：

Nan SHENG, Jiali MA, Wenwen DING, et al. Effect of family management patterns on quality of life of children with chronic diseases[J]. Journal of Third Military Medical University, 2018, 40(17): 1605-1612. DOI： 10.16016/j.1000-5404.201803037.

摘要

Abstract

Objective

To identify the effect of different family management patterns for children with chronic diseases on their quality of life.

Methods

A total of 394 chronically ill children aged 8 to 18 years and their caregivers were recruited from 2 Grade-3 Class-A children hospitals in Shanghai from June 2016 to July 2017 through convenience sampling. A demographic questionnaire

Family Management Measure (FaMM) and Pediatric Quality of Life Inventory 4.0 Generic Core Scale (PedsQLTM4.0) were employed to survey the participants. Cluster analysis was performed using SPSS 20.0 based on the scores of 6 FaMM subscales to categorize different patterns of family management. General characteristics and quality of life of the children were compared in different types of families.

Results

There were 4 identified clusters in family management patterns

that is

effective managing

adaptive managing

incompetent managing

and difficult managing. Significant differences existed in the disease duration

times of hospitalizations within half a year

length of hospital stay

days absent from school

one-child family

family monthly income

parental educational level

parental occupation

and total scores and score of every dimension of quality of life among the children from the 4 clusters (

0.05). Multiple regression analysis showed that disease duration

days absent from school within half a year

and incompetent and difficult family management patterns were associated with children's overall quality of life (β=-0.119

-0.147

-0.248

-0.294;

0.05)

and they accounted for 23.1% of the variance of children's quality of life.

Conclusion

There are 4 different family management patterns for children with chronic diseases

and they are closely associated with their quality of life. Doctors and nurses can make more accurate disease management plans for the families of children with chronic diseases according to the characteristics and differences of different family management patterns

which can effectively improve the quality of life.

关键词

Keywords

references

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