Effects of empowerment education on postoperative quality of life in children with congenital esophageal atresia

Dai Lurun; Mo Lin; Shen Yujie; Zhou Yating

doi:10.13406/j.cnki.cyxb.003539

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Effects of empowerment education on postoperative quality of life in children with congenital esophageal atresia

Clinical research | 更新时间：2025-10-21

- Effects of empowerment education on postoperative quality of life in children with congenital esophageal atresia
- Journal of Chongqing Medical University Vol. 49, Issue 7, Pages: 877-883(2024)
- 作者机构：
  
  1.重庆医科大学附属儿童医院，心胸外科，重庆 400014
  2.重庆医科大学附属儿童医院，门诊部；儿童发育疾病研究教育部重点实验室；儿科学重庆市重点实验室；国家儿童健康与疾病临床医学研究中心；儿童发育重大疾病国家国际科技合作基地，重庆 400014
- 作者简介：
- 基金信息：
- DOI：10.13406/j.cnki.cyxb.003539
  CLC： R473.72
- Received：29 February 2024，
  
  Revised：2024-04-06，
  
  Accepted：22 April 2024，
  
  Published：28 July 2024
- 稿件说明：
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代禄润,莫霖,申玉洁,等.赋能教育对先天性食管闭锁患儿术后生存质量的影响[J].重庆医科大学学报,2024,49(7):877-883.

Dai Lurun,Mo Lin,Shen Yujie,et al.Effects of empowerment education on postoperative quality of life in children with congenital esophageal atresia[J].Journal of Chongqing Medical University,2024,49(7):877-883.
代禄润,莫霖,申玉洁,等.赋能教育对先天性食管闭锁患儿术后生存质量的影响[J].重庆医科大学学报,2024,49(7):877-883. DOI： 10.13406/j.cnki.cyxb.003539.

Dai Lurun,Mo Lin,Shen Yujie,et al.Effects of empowerment education on postoperative quality of life in children with congenital esophageal atresia[J].Journal of Chongqing Medical University,2024,49(7):877-883. DOI： 10.13406/j.cnki.cyxb.003539.

摘要

目的

探讨赋能教育对先天性食管闭锁患儿术后生存质量的影响。

方法

开展平行对照试验，动态纳入2020年3月至2023年2月于本院就诊的86例先天性食管闭锁患儿为研究对象，按照入组先后顺序分为对照组（

=42）和试验组（

=44）。对照组接受常规健康宣教，试验组在对照组基础上对患儿家长实施赋能教育，干预期为3个月。比较2组干预前后生存质量、生长发育、术后并发症发生情况以及家长疾病知识掌握度和护理满意度。

结果

干预后，试验组生存质量总分高于干预前［87.50（79.32，97.22） vs. 78.17（75.00，88.54）］，在生理、心理情感、社会交往和学校角色领域得分均高于干预前，均

0.05；与对照组相比，试验组生存质量总分高于对照组［87.50（79.32，97.22） vs. 79.76（71.88，89.29）］，在生理、

心理情感、社会交往领域得分均高于对照组，均

0.05。干预后，试验组体质指数［15.70（15.08，16.48）］优于干预前的［15.05（14.35，16.00）］和对照组的［14.85（13.60，16.00）］，均

0.05。

结论

赋能教育能有效提高先天性食管闭锁患儿术后生存质量，降低呼吸困难的发生率以及吞咽困难和呛咳的发生频率，缓解术后并发症带给患儿的不适感受，提升患儿术后体质指数，提高家长疾病知识掌握度和护理满意度。

Abstract

Objective

To investigate the effects of empowerment education on postoperative quality of life in children with congenital esophageal atresia.

Methods

Using a parallel-controlled design，we dynamically enrolled 86 children with congenital esophageal atresia who visited the Children’s Hospital of Chongqing Medical University from March 2020 to February 2023. They were assigned into control group（

=42） and experimental group（

=44） according to the order of enrollment. The control group received conventional health education，while for the experimental group，in addition to the conventional intervention，empowerment education was administered to the parents of the children，for a period of 3 months. The two groups were compared in terms of quality of life before and after intervention，growth and development，postoperative complications，and parents’ knowledge of the disease and satisfaction with nursing care.

Results

After intervention，the experimental group showed a significantly higher total score of quality of life［87.50（79.32，97.22）vs.78.17（75.00，88.54）］ and significantly higher scores in the physical domain，psycho-emotional domain，social interaction，and school roles（all

0.05）；and compared with the control group，the experimental group also had a significantly higher total score of quality of life［87.50（79.32，97.22）vs.79.76（71.88，89.29）］ as well as significantly higher scores in the physical，psycho-emotional，and social interaction domains（all

0.05）. After the intervention，the body mass index of the e

xperimental group was ［15.70（15.08，16.48）］，which was significantly better than the pre-intervention level［15.05（14.35，16.00）］ and that of the control group［14.85（13.60，16.00）；bothP

0.05］. The experimental group had significantly less frequent dyspnea（22.73% vs. 42.86%） and dysphagia and bucking as well as a significantly higher level of disease knowledge and degree of satisfaction with nursing care compared with the control group（all

0.05）.

Conclusion

Empowerment education can effectively improve the postoperative quality of life of children with congenital esophageal atresia； reduce the incidence of dyspnea，dysphagia，and bucking； alleviate the discomfort caused by postoperative complications； increase the body mass index after surgery； and improve parents’ disease knowledge and satisfaction with care.

关键词

Keywords

references

Bowder AN ， Lal DR . Advances in the surgical management of esophageal atresia [J ] . Adv Pediatr ， 2021 ， 68 ： 245 - 259 ．

Zimmer J ， Eaton S ， Murchison LE ， et al . State of play：eight decades of surgery for esophageal atresia [J ] . Z Fur Kinderchirurgie ， 2019 ， 29 （ 1 ）： 39 - 48 ．

van Lennep M ， Singendonk MMJ ， Dall'Oglio L ， et al . Oesophageal atresia [J ] . Nat Rev Dis Primers . 2019 ， 5 （ 1 ）： 26 .

Capitanio M ， Guaná R ， Garofalo S ， et al . Quality of life and long-term results in patients operated on for Esophageal Atresia [J ] . Minerva Pediatr ， 2021 ．

Dellenmark-Blom M ， Quitmann J ， Dingemann C . Health-related quality of life in patients after repair of esophageal atresia：a review of current literature [J ] . Z Fur Kinderchirurgie ， 2020 ， 30 （ 3 ）： 239 - 250 ．

Dellenmark-Blom M ， Örnö Ax S ， Öst E ， et al . Postoperative morbidity and health-related quality of life in children with delayed reconstruction of esophageal atresia：a nationwide Swedish study [J ] . Orphanet J Rare Dis ， 2022 ， 17 （ 1 ）： 239 ．

Dellenmark-Blom M ， Quitmann J ， Dingemann J ， et al . Clinical factors affecting condition-specific quality-of-life domains in pediatric patients after repair of esophageal atresia：the swedish-german EA-QOL study [J ] . Z Fur Kinderchirurgie ， 2020 ， 30 （ 1 ）： 96 - 103 ．

Rozensztrauch A ， Śmigiel R ， Błoch M ， et al . The impact of congenital esophageal atresia on the family functioning [J ] . J Pediatr Nurs ， 2020 ， 50 ： e85 - e90 ．

Svoboda E ， Fruithof J ， Widenmann-Grolig A ， et al . A patient led，international study of long term outcomes of esophageal atresia：eat 1 [J ] . J Pediatr Surg ， 2018 ， 53 （ 4 ）： 610 - 615 ．

洪燕璇，郑友贞，周晓云 . 赋能教育在癌症患者PICC置管中的应用 [J ] . 齐鲁护理杂志， 2021 ， 27 （ 11 ）： 58 - 61 ．

Hong YX ， Zheng YZ ， Zhou XY . Application of empowerment education in PICC catheterization for cancer patients [J ] . J Qilu Nurs ， 2021 ， 27 （ 11 ）： 58 - 61 ．

冯　众，沈　淳 . 先天性食管闭锁患者手术后远期健康相关生活质量及评估方法的研究进展 [J ] . 临床小儿外科杂志， 2021 ， 20 （ 12 ）： 1137 - 1142 ．

Feng Z ， Shen C . Research advances of long-term health-related quality-of-life and evaluation methods of congenital esophageal atresia [J ] . J Clin Pediatr Surg ， 2021 ， 20 （ 12 ）： 1137 - 1142 ．

代禄润，莫　霖，潘征夏，等 . 先天性食道闭锁患儿术后生存质量现状调查及影响因素分析 [J ] . 医药卫生， 2023 ， 9 （ 6 ）： 11 - 20 ．

Dai LR ， Mo L ， Pan ZX ， et al . Investigation of quality of life in children with congenital esophageal atresia after operation and analysis of influencing factors [J ] . Medicine and hygiene ， 2023 ， 9 （ 6 ）： 11 - 20 ．

Dellenmark-Blom M ， Chaplin JE ， Quitmann JH ， et al . The prevalence and role of coping strategies in the nutritional intake of children born with esophageal atresia：a condition-specific approach [J ] . Dis Esophagus ， 2019 ， 32 （ 7 ）： doz004 ．

平燕汝，李　雪，许虹 . 赋能在我国糖尿病患者护理中应用的文献计量学分析 [J ] . 中华护理教育， 2021 ， 18 （ 6 ）： 505 - 509 ．

Ping YR ， Li X ， Xu H . Bibliometric analysis of empowerment in care of patients with diabetes mellitus in China [J ] . Chin J Nurs Educ ， 2021 ， 18 （ 6 ）： 505 - 509 ．

谢　丽，朱　丹，程丽丽，等 . 赋能教育方案在先天性巨结肠肠造口患儿照护者中的应用 [J ] . 中国护理管理， 2022 ， 22 （ 8 ）： 1154 - 1158 ．

Xie L ， Zhu D ， Cheng LL ， et al . Application effects of enabling education programs in caregivers of children with congenital megacolon enterostomy [J ] . Chin Nurs Manag ， 2022 ， 22 （ 8 ）： 1154 - 1158 ．

胡　琴，黄晶晶，张　晴 . 家属赋能联合信息化服务在脑胶质瘤患者术后的应用 [J ] . 护理学杂志， 2022 ， 37 （ 11 ）： 24 - 27 ．

Hu Q ， Huang JJ ， Zhang Q . Application of family empowerment combined with information service to patients undergoing glioma surgery [J ] . J Nurs Sci ， 2022 ， 37 （ 11 ）： 24 - 27 ．

习林云，吴　春，潘征夏，等 . Ⅲ型先天性食管闭锁手术后并发症的危险因素分析 [J ] . 临床小儿外科杂志， 2019 ， 18 （ 6 ）： 462 - 466 ．

Xi LY ， Wu C ， Pan ZX ， et al . Analysis of risk factors of complications in type Ⅲ congenital esophageal atresia [J ] . J Clin Pediatr Surg ， 2019 ， 18 （ 6 ）： 462 - 466 ．

林阳文 . 食管闭锁重建术后食管功能评估的现状与发展 [J ] . 临床小儿外科杂志， 2021 ， 20 （ 4 ）： 388 - 392 ．

Lin YW . Current status and future development of esophageal function after a reconstruction of esophageal atresia [J ] . J Clin Pediatr Surg ， 2021 ， 20 （ 4 ）： 388 - 392 ．

雷利志，姚　慧，谢小花，等 . “贫困地区儿童营养改善试点项目” 对广西贫困地区5岁以下儿童生长发育的促进作用 [J ] . 广西医学， 2023 ， 45 （ 6 ）： 686 - 689，703 ．

Lei LZ ， Yao H ， Xie XH ， et al . Facilitated effect of “pilot project to improve children’s nutrition in poor areas” on growth and development of children under 5 years old in poor areas of Guangxi [J ] . J Natl Prosec Coll ， 2023 ， 45 （ 6 ）： 686 - 689，703 ．

田利红，骆　婧，胡志燕，等 . 基于期望理论的赋能教育对早产儿出院后父母应对能力的影响 [J ] . 海南医学， 2023 ， 34 （ 15 ）： 2256 - 2260 ．

Tian LH ， Luo J ， Hu ZY ， et al . Effects of empowerment education based on expectation theory on parental coping ability after discharge of premature infants [J ] . Hainan Med J ， 2023 ， 34 （ 15 ）： 2256 - 2260 ．

邹美玲，许彩霞，谭艳映，等 . 赋能教育对肠造口患者预防效果 [J ] . 中国城乡企业卫生， 2023 ， 38 （ 8 ）： 120 - 122 ．

Zou ML ， Xu CX ， Tan YY ， et al . Preventive effect of empowerment education on enterostomy patient [J ] . Chin J Urban Rural Enterp Hyg ， 2023 ， 38 （ 8 ）： 120 - 122 ．

田瑞杰，王荟苹，吴　歌 . 赋能教育在腹膜透析相关性腹膜炎病人中的应用效果 [J ] . 护理研究， 2020 ， 34 （ 15 ）： 2752 - 2755 ．

Tian RJ ， Wang HP ， Wu G . Application effect of empowerment based education in patients with peritoneal dialysis associated peritonitis [J ] . Chin Nurs Res ， 2020 ， 34 （ 15 ）： 2752 - 2755 ．

吴红妹，何秀云 . 基于微信支持的健康教育在先天性食道闭锁新生儿母亲中的应用 [J ] . 当代护士（下旬刊）， 2022 ， 29 （ 6 ）： 151 - 154 .

Wu HM ， He XY . Application of health education based on wechat support in newborn mothers with congenital esophageal atresia [J ] . Mod Nurse ， 2022 ， 8 （ 6 ）： 151 - 154 ．

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